Can I tell you something. Got to tell you one thing. If you expect the freedom that you say is yours prove that you deserve it. Help us to preserve it or being free will just be words and nothing more.
Kansas, 1974

Tuesday, September 27, 2011

Autistic Self Advocates and Autism Parent Advocates Continued

The conversation continues. This latest installment I call, What Happens To Disabled Adults When Parent voices Are Considered The Only Ones Worth Listening To? Nothing good.
I could not get a single solitary service from either of these places. The CIL barely knew what autism was; they dealt mostly in physical disabilities and they were less than helpful in filling out forms or narrowing choices down for housing or anything -- things I desperately need help with. And the ARC?

Oh god, the ARC. Let me tell you what they said: “we usually deal with clients' parents.” I was there because I very suddenly had no parental or other net. But they wouldn't help me, even a little, because my parents were very much not in the picture. They told me that I was too smart for most of their stuff, but they wouldn't help even a little with anything else because they interface with parents rather than clients.

In those six months, I did not fall through the cracks -- I was shoved into the cracks. The paradigm that only parents can advocate for disabled people could very easily have killed me, between undertreated medical issues and a fundamental inability to get done the things that needed doing for basic survival.

No comments:

Post a Comment