Story of My Life
I heard parts of this story some time ago and thought it sounded like the story of my life. I got to hear more of it as it was rebroadcast a few days ago and it still sounds a lot like my life. I highly recommend listening to the interview. I'll put the book on my birthday list and see if I get it.
Mary Beth Busby & Megan Massey: "Dear Megan: Letters on Life, Love and Fragile X
Two mothers of sons with Fragile X syndrome, the most common inherited cause of mental retardation and autism, share stories of grief and triumph.
Mary Beth Busby, a founding board member of the Fragile X Research Foundation (FRAXA).
Megan Massey, registered nurse and vice president of the Board of Directors of FRAXA.