Story of My Life

By
I heard parts of this story some time ago and thought it sounded like the story of my life. I got to hear more of it as it was rebroadcast a few days ago and it still sounds a lot like my life. I highly recommend listening to the interview. I'll put the book on my birthday list and see if I get it.
Mary Beth Busby & Megan Massey: "Dear Megan: Letters on Life, Love and Fragile X

Two mothers of sons with Fragile X syndrome, the most common inherited cause of mental retardation and autism, share stories of grief and triumph.

Guests

Mary Beth Busby, a founding board member of the Fragile X Research Foundation (FRAXA).

Megan Massey, registered nurse and vice president of the Board of Directors of FRAXA.

Comments

Post a Comment

Popular Posts

Rise Up In The Darkness

By
Image
The teenager who joked with me over physics and algebra homework tonight was 6 months old the morning of September 11, 2001. He spent that day like many other 6 month olds spend their days, exploring his world and being saved from his own curiosity by mom. That morning after I got tired of hauling him back from the edge of the bed he was intent on crawling over I took him downstairs to safer level terrain. I turned on the television to check the news like I did every morning back then. At first I was horrified by what I saw. One smoldering tower. Not long after, while all the reporters and newscasters were struggling to make sense of what they were seeing, one plane, another tower, and I was pissed. At that point I understood what was happening. Why did people think, and still think, that kind of wretchedness served their cause? I didn't care what the cause was. These were arrogant fools. But the news kept coming about just how wretched humanity had been to itself that day. The
Read more

Treating autism as traumatic brain injury

By
I've been doing research into autism, dyspraxia, how the normal brain works, and how an autistic/dyspraxic brain works (or doesn't work). Traumatic injury to different parts of the brain can cause the same problems suffered by autistic and dyspraxic children. Compare this list of the functions of different parts of the brain and the problems caused by injuries to those areas with these descriptions of dyspraxia and autism. What is Developmental Dyspraxia? Developmental dyspraxia is a disorder characterized by an impairment in the ability to plan and carry out sensory and motor tasks. Generally, individuals with the disorder appear "out of sync" with their environment. Symptoms vary and may include poor balance and coordination, clumsiness, vision problems, perception difficulties, emotional and behavioral problems, difficulty with reading, writing, and speaking, poor social skills, poor posture, and poor short-term memory. Although individuals with the disorder may b
Read more

Battlestar Galactica needs more colour?

By
Here are the letters I mentioned in the previous post. The one that started it (I'm guessing these letters were written after the show's first airing at the end of 2003): Galactica Needs More Diversity The problem I had with Battlestar Galactica was there were no major and very few minor African American characters. There were no Black men in the show at all or if they were, they had virtually no screentime. In the original series, Boomer and Tigh were both played by African American actors. In this rendition of Battlestar, those characters were played by Asian and White actors. In the Caprica city, there no African American extras. On the Galactica's bridge, there was only one African American actress. Another Black actress could be found playing a religious official that swore in the new President of the colonies. This was very troubling to me. Do you not want African Americans to watch your show? Do you want to project the idea that African Americans are not part of the
Read more